A little about the Founder – Laurie Sterner
I’ve always been involved in something…some kind of event, or organization that was there to help someone else. In my life, I realized that so many people wait for some terrible thing to happen to them before they get involved…I guess I was never one of those people. I’ve always felt that if you can do something for someone in need, you need to do it.
Why EB involvement?
I met a very young boy, named Cody, about 20 years ago who had this terrible skin disease. Didn’t know what it was, but he was just the cutest little thing with this very sad disease. Many years passed and one day, there was an article in a local paper that ran a story on Cody and his life with Epidermolysis Bullosa, also known as EB. There was the word…a name for this terrible skin disease. After several years of research, I came to meet so many families who themselves had EB or had a child with it. My heart was touched beyond words…something to this day, I cannot fully explain. Maybe it’s the unspeakable pain and suffering that EB causes, or maybe it’s the smile on these children’s faces through it all…I really don’t know. I met someone recently who said to me “ I did not choose EB, EB chose me”…though I didn’t know this person well at the time, those words He spoke, were taken directly from my heart~
I’ve been involved in many organizations and donated to more than I can remember. Everyday, we as people have struggles and hardships. But everyday, I think about another family, who is living a life with TRUE struggles, the kind of struggles most of us cannot even begin to imagine. I cannot fathom the sight of seeing my child in pain, fighting for his or her own precious life and experience the unspeakable pain of losing my child to some horrific disease or catastrophic event. THIS is the reason for The Butterfly Fund.
It’s for all the families who live this reality and to get all the other families involved because it’s the right thing to do~
I may be the founder of the Butterfly Fund, but I feel more like the “messenger” of it.
To put it simply, I cannot do this alone and I never started The Butterfly Fund to prove anything to myself. Only with your help, can we make a difference in the lives of children, who are at the moment, fragile, as butterflies and I know, with all that I am and all that I believe in, we can and will do this